(I know it has been a while since the last post and you are all expecting some pictures from Disneyland, I am sorry.)
I recently read a book by Jenny McGarthy, Louder Than Words, and I was inspired by her story of how she became her son’s advocate in understanding and pulling him out of Autism.
Last year they finally put a name to the pain that I have been going through daily for the last couple of years, Fibromyalgia. I have a name for it, but now what do I do with it. My doctor gave me some meds that I take daily for pain control and a few stretches to do. And told me that hopefully that if I don’t have any relapses I could be pain free in 5 years.
After reading Jenny’s book I decide that what the doctor told me wasn’t good enough. So I am going to become a Fibro “expert”. I have order six books that have an array of Fibro information that I am going to be able drink up and become my own advocate.
Things I have learned so far:
1)Between 2% and 7% of the world’s population suffers from Fibromyalgia
2)Fibro effects women more than men by 10 to 1
3)I have to be my own voice, you can not see my illness. So the people around me might see someone who look perfectly healthy but I am in a lot of pain that at the moment I have no control over.