(I know it has been a while since the last post and you are all expecting some pictures from Disneyland, I am sorry.)
I recently read a book by Jenny McGarthy, Louder Than Words, and I was inspired by her story of how she became her son’s advocate in understanding and pulling him out of Autism.
Last year they finally put a name to the pain that I have been going through daily for the last couple of years, Fibromyalgia. I have a name for it, but now what do I do with it. My doctor gave me some meds that I take daily for pain control and a few stretches to do. And told me that hopefully that if I don’t have any relapses I could be pain free in 5 years.
After reading Jenny’s book I decide that what the doctor told me wasn’t good enough. So I am going to become a Fibro “expert”. I have order six books that have an array of Fibro information that I am going to be able drink up and become my own advocate.
Things I have learned so far:
1)Between 2% and 7% of the world’s population suffers from Fibromyalgia
2)Fibro effects women more than men by 10 to 1
3)I have to be my own voice, you can not see my illness. So the people around me might see someone who look perfectly healthy but I am in a lot of pain that at the moment I have no control over.
Just thought I’d add that I’m looking forward to reading all these books as well (some more than others, but that’s for another post). Hopefully it’ll help me understand what’s wrong with you! 😉
I’m glad they came up with what it is and also glad that you are taking charge of it. I am hoping that you will find some answers in these books. Praying for you! Love you!
Julie